Browsing by Author "Giuliano, AFM"

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    Impairment of EQ-5D-5L Domains According to Allergic Rhinitis and Asthma Control: A MASK-air Real-World Study
    (ELSEVIER) Sousa-Pinto, B; Louis, G; Rodrigues, J; Giuliano, AFM; Baiardini, I; Braido, F; Czarlewski, W; Bedbrook, A; Haahtela, T; Valiulis, A; Brussino, L; Cecchi, L; Cruz, AA; Gemicioglu, B; Fokkens, WJ; Ivancevich, JC; Klimek, L; Kraxner, H; Kuna, P; Kupczyk, M; Kvedariene, V; Larenas-Linnemann, D; Louis, R; Nadif, R; Niedoszytko, M; Okamoto, Y; Ollert, M; Papadopoulos, NG; Patella, V; Pawankar, R; Pham-Thi, N; Pfaar, O; Regateiro, FS; Roche, N; Rouadi, PW; Samolinski, B; Sastre, J; Savouré, M; Scichilone, N; Sheikh, A; Taborda-Barata, L; Toppila-Salmi, S; Yorgancioglu, A; Zidarn, M; Anto, JM; Zuberbier, T; Canonica, GW; Ventura, MT; Fonseca, JA; Pétré, B; Bousquet, J
    BACKGROUND: EQ-5D-5L (EuroQOL, 5 Domains, 5 Levels) is a widely used health-related quality-of-life instrument, comprising 5 domains. However, it is not known how each domain is impacted by rhinitis or asthma control. OBJECTIVE: To assess the association between rhinitis or asthma control and the different EQ-5D-5L domains using data from the MASK-air mHealth app. METHODS: In this cross-sectional study, we assessed data from all MASK-air users (2015-2021; 24 countries). For the levels of each EQ-5D-5L domain, we assessed rhinitis and asthma visual analog scales (VASs) and the combined symptom-medication score (CSMS). We built ordinal multivariable models assessing the adjusted association between VAS/CSMS values and the levels of each EQ-5D-5L domain. Finally, we compared EQ-5D-5L data from users with rhinitis and self-reported asthma with data from users with rhinitis alone. RESULTS: We assessed 5354 days from 3092 users. We observed an association between worse control of rhinitis or asthma (higher VASs and CSMS) and worse EQ-5D-5L levels. In multivariable models, all VASs and the CSMS were associated with higher levels of pain/discomfort and daily activities. For anxiety/depression, the association was mostly observed for rhinitis-related tools (VAS nose, VAS global, and CSMS), although the presence of self-reported asthma was also associated with worse anxiety/depression. Worse mobility (walking around) was particularly associated with VAS asthma and with the presence of asthma.CONCLUSIONS: A worse rhinitis control and a worse asthma control are associated with higher EQ-5D-5L levels, particularly regarding pain/discomfort and activity impairment. Worse rhinitis control is associated with worse anxiety/depression, and poor asthma control with worse mobility. (c) 2023 American Academy of Allergy, Asthma & Immunology (J Allergy Clin Immunol Pract 2023;11:3742-51)
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    UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan
    (WILEY) Bousquet, J; Samolinski, B; Kaidashev, I; Maurer, M; Roche, N; Sousa-Pinto, B; Kurchenko, A; Stepanenko, R; Tsaryk, V; Klimek, L; Ventura, MT; Bedbrook, A; Czarlewski, W; Lysanets, Y; Kupczyk, M; Skolimowski, L; Kulus, M; Del Giacco, S; Ollert, M; Garcia-Aymerich, J; Cordeiro, CR; Yorgancioglu, A; Schlapbach, C; Amaral, R; Bonaglia, C; Bossé, I; Buquicchio, R; Christou, D; Fedoruk, G; Fontanesi, P; Gemicioglu, B; Giuliano, AFM; Lepore, P; Nakonechna, A; Neisinger, S; Pereira, AM; Ramanauskaite, A; Raciborski, F; Sitkauskiene, B; Sokhatska, O; Stepanenko, V; Stevanovic, K; Syzon, O; Kvedariene, V; de Vries, G; van Eerd, M; Valiulis, A; Fonseca, JA; Anto, JM; Haahtela, T; Schünemann, H; Zuberbier, T
    Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK air (R) (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE (R) (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID- developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)- is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.