Browsing by Author "Lucas-Carrasco R."

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    Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study
    (2010) Schmidt S.; Power M.; Green A.; Lucas-Carrasco R.; Eser E.; Dragomirecka E.; Fleck M.
    The aim of this study was to analyze the agreement between self and proxy reports of quality of life (QoL) in people with intellectual disabilities and to examine the factors which contribute to these differences. The study was conducted across six international centres in a sample of 614 adults with intellectual disabilities as well as two different samples of proxies (N=874) including both professional carers and relatives. QoL was assessed with the disability version of the WHOQOL-BREF.In both proxy samples results show a significant moderate association between the persons' QoL-assessment and the assessment of their proxies in all of the five QoL domains. There were significant mean differences in most items which varied in their direction. In general, people with disabilities rated their QoL higher than their proxies except for two items from the physical domain. The factors which most significantly contributed to these differences were proxy knowledge of the person as well as the WHODAS-disability score. Cross-cultural differences in the magnitude of concordance were observed.As a conclusion, the study shows a good agreement between the person-proxy QoL-assessments, and that the factors associated with disagreement are limited in this study. Future studies should elaborate the stability of concordance over time. © 2010 Elsevier Ltd.
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    The Quality of Care and Support (QOCS) for people with disability scale: Development and psychometric properties
    (2011) Lucas-Carrasco R.; Eser E.; Hao Y.; McPherson K.M.; Green A.; Kullmann L.
    This paper describes the development of a Quality of Care and Support (QOCS) scale for use with adult persons with physical and intellectual disabilities. In the pilot phase of the study, 12 centers from around the world carried out focus groups with people with physical and disabilities, their carers, and with professionals in order to identify themes that were relevant for their quality of care. Items generated from the focus groups were then tested in a pilot study with 1400 respondents from 15 different centers worldwide, with items being tested and reduced using both classical and modern psychometric methods. A field trial study was then carried out with 3772 respondents, again with the use of both classical and modern psychometric methods. The outcome of the two rounds of data collection and analysis is a 17-item module for assessment of quality of care in physically or intellectually disabled people. Further modifications are also proposed for the use of the QOCS with adults with intellectual disabilities, including simplification of wording of some of the items, the use of a three-point response scale, and the inclusion of smiley faces. © 2010 Elsevier Ltd.
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    Using the satisfaction with life scale in people with parkinson's disease: A validation study in different european countries
    (ScientificWorld Ltd., 2014) Lucas-Carrasco R.; Den Oudsten B.L.; Eser E.; Power M.J.
    Overall, people with chronic illnesses have lower life satisfaction compared to nonclinical populations. The objective of this international study was to examine the psychometric properties of the Satisfaction with Life Scale (SWLS) in patients with Parkinson's disease (PD). Methods. PD patients (n = 350) were recruited and interviewed at different specialized services in the United Kingdom, Spain, Czech Republic, Italy, andThe Netherlands. A questionnaire set including a measure of life satisfaction, quality of life (QoL), self-reported health and disability status, and sociodemographic information was used. Acceptability, reliability, and validity were examined. Results.The internal consistency was good (α = 0.81). The scale structure was satisfactory (comparative fit index = 0.99; root mean square error of approximation = 0.08).The SWLS was able to discriminate between healthy and unhealthy, disabled and nondisabled, and those perceiving a more severe impact of the disability on their lives. Concurrent validity usingmultiple linear regressionmodels confirmed associations between SWLS and QoL and age. Conclusions.This study is the first to report on the use of the SWLS in PD patients in different European countries. It is a useful tool in assessing satisfaction with life in PD patients through the continuum of care. © 2014 Ramona Lucas-Carrasco et al.