Browsing by Subject "GA(2)LEN"

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    Aligning the Good Practice MASK With the Objectives of the European Innovation Partnership on Active and Healthy Ageing
    (KOREAN ACAD ASTHMA ALLERGY & CLINICAL IMMUNOLOGY) Bousquet, J; Farrell, J; Illario, M; Onorato, GL; Bedbrook, A; Czarlewski, W; Micheli, Y; Arnavielhe, S; Ansotegui, IJ; Anto, JM; Bachert, C; Basagaña, X; Bédard, A; Benveniste, S; Bergmann, KC; Bewick, M; Bindslev-Jensen, C; Bjermer, L; Blain, H; Bosnic-Anticevich, S; Bosse, I; Braido, F; Brussino, L; Camuzat, T; Canonica, GW; Cardona, V; Martins, PC; Cecchi, L; Chavannes, NH; Chu, DK; da Sousa, JC; Costa, DJ; Costa, E; Cruz, AA; da Silva, J; Devillier, P; De Feo, G; De Vries, G; Dray, G; Ebisawa, M; Erhola, M; Fauquert, JL; Fokkens, WJ; Fonseca, J; Fontaine, JM; Gemicioglu, B; Haahtela, T; Heffler, E; Hellings, PW; Ivancevich, JC; Jassem, E; Jutel, M; Kaidashev, I; Kalayci, O; Klimek, L; Kowalski, ML; Kull, I; Kuna, P; Kvedariene, V; La Grutta, S; Laune, D; Larenas-Linnemann, D; Ierodiakonou, D; Le, LTT; Lourenço, O; Makris, M; Menditto, E; Monti, R; Morais-Almeida, M; Münter, L; Muraro, A; Murray, R; Maurer, M; Melén, E; Mösges, R; Mullol, J; Niedoszytko, M; O'Hehir, RE; Okamoto, Y; Papadopoulos, NG; Passalacqua, G; Patella, V; Pereira, AM; Pfaar, O; Pham-Thi, N; Portejoie, F; Price, D; Prokopakis, EP; Psarros, F; Raciborski, F; Regateiro, F; Reitsma, S; Roche, N; Rolland, C; Ryan, D; Samolinski, B; Sastre, J; Scadding, GK; Schmid-Grendelmeier, P; Schünemann, HJ; Shamji, M; Sheikh, A; Stellato, C; Suppli-Ulrik, C; Somekh, D; Sova, M; Bom, AT; Tomazic, PV; Toppila-Salmi, S; Triggiani, M; Tsiligianni, I; Valero, A; Valiulis, A; Valovirta, E; van Eerd, M; Vasankari, T; Ventura, MT; Wallace, D; Waserman, S; Yorgancioglu, A; Zidarn, M; Zuberbier, T
    The reference sites of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA) were renewed in 2019. The DG Sante good practice Mobile Airways Sentinel networK was reviewed to meet the objectives of the EIP on AHA. It included 1) Management of care process, 2) Blueprint of digital transformation, 3) EIP on AHA, innovation to market, 4) Community for monitoring and assessment framework, 5) Political, organizational, technological and financial readiness, 6) Contributing to European co-operation and transferability, 7) Delivering evidence of impact against the triple win approach, 8) Contribution to the European Digital Transformation of Health and Care and 9) scale of demonstration and deployment of innovation.
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    Daily allergic multimorbidity in rhinitis using mobile technology: A novel concept of the MASK study
    (WILEY) Bousquet, J; Devillier, P; Anto, JM; Bewick, M; Haahtela, T; Arnavielhe, S; Bedbrook, A; Murray, R; van Eerd, M; Fonseca, JA; Almeida, MM; Bom, AT; Menditto, E; Passalacqua, G; Stellato, C; Triggiani, M; Ventura, MT; Vezzani, G; Annesi-Maesano, I; Bourret, R; Bosse, I; Caimmi, D; Cartier, C; Demoly, P; Just, J; Portejoie, F; Siroux, V; Viart, F; Bergmann, KC; Keil, T; Klimek, L; Mösges, R; Pfaar, O; Shamai, S; Zuberbier, T; Mullol, J; Valero, A; Spranger, O; Tomazic, PV; Kowalski, ML; Kuna, P; Kupczyk, M; Raciborski, F; Samolinski, B; Toppila-Salmi, SK; Valovirta, E; Cruz, AA; Sarquis-Serpa, F; da Silva, J; Stelmach, R; Larenas-Linnemann, D; Gonzalez, MR; Cabañas, MTB; Kvedariene, V; Valiulis, A; Chavannes, NH; Fokkens, WJ; Ryan, D; Sheikh, A; Bachert, C; Hellings, PW; VandenPlas, O; Ballardini, N; Kull, I; Melén, E; Westman, M; Wickman, M; Bindslev-Jensen, C; Eller, E; Bosnic-Anticevich, S; O'Hehir, RE; Agache, I; Bieber, T; Casale, T; Gemicioglu, B; Ivancevich, JC; De Vries, G; Sorensen, M; Yorgancioglu, A; Laune, D
    BackgroundMultimorbidity in allergic airway diseases is well known, but no data exist about the daily dynamics of symptoms and their impact on work. To better understand this, we aimed to assess the presence and control of daily allergic multimorbidity (asthma, conjunctivitis, rhinitis) and its impact on work productivity using a mobile technology, the Allergy Diary. MethodsWe undertook a 1-year prospective observational study in which 4 210 users and 32585days were monitored in 19 countries. Five visual analogue scales (VAS) assessed the daily burden of the disease (i.e., global evaluation, nose, eyes, asthma and work). Visual analogue scale levels <20/100 were categorized as Low burden and VAS levels 50/100 as High burden. ResultsVisual analogue scales global measured levels assessing the global control of the allergic disease were significantly associated with allergic multimorbidity. Eight hypothesis-driven patterns were defined based on Low and High VAS levels. There were <0.2% days of Rhinitis Low and Asthma High or Conjunctivitis High patterns. There were 5.9% days with a Rhinitis HighAsthma Low pattern. There were 1.7% days with a Rhinitis HighAsthma HighConjunctivitis Lowpattern. A novel Rhinitis HighAsthma HighConjunctivitis High pattern was identified in 2.9% days and had the greatest impact on uncontrolled VAS global measured and impaired work productivity. Work productivity was significantly correlated with VAS global measured levels. ConclusionsIn a novel approach examining daily symptoms with mobile technology, we found considerable intra-individual variability of allergic multimorbidity including a previously unrecognized extreme pattern of uncontrolled multimorbidity.
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    AIRWAYS-ICPs (European Innovation Partnership on Active and Healthy Ageing) from concept to implementation
    (EUROPEAN RESPIRATORY SOC JOURNALS LTD) Bousquet, J; Barbara, C; Bateman, E; Bel, E; Bewick, M; Chavannes, NH; Cruz, AA; Haahtela, T; Hellings, PW; Khaltaev, N; Carlsen, KL; Muraro, A; Cordeiro, CR; Rosado-Pinto, J; Samolinski, B; Strandberg, T; Valiulis, A; Yorgancioglu, A; Zuberbier, T
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    ARIA digital anamorphosis: Digital transformation of health and care in airway diseases from research to practice
    (WILEY) Bousquet, J; Anto, JM; Bachert, C; Haahtela, T; Zuberbier, T; Czarlewski, W; Bedbrook, A; Bosnic-Anticevich, S; Canonica, GW; Cardona, V; Costa, E; Cruz, AA; Erhola, M; Fokkens, WJ; Fonseca, JA; Illario, M; Ivancevich, JC; Jutel, M; Klimek, L; Kuna, P; Kvedariene, V; Le, L; Larenas-Linnemann, DE; Laune, D; Lourenço, OM; Melén, E; Mullol, J; Niedoszytko, M; Odemyr, M; Okamoto, Y; Papadopoulos, NG; Patella, V; Pfaar, O; Pham-Thi, N; Rolland, C; Samolinski, B; Sheikh, A; Sofiev, M; Ulrik, CS; Todo-Bom, A; Tomazic, PV; Toppila-Salmi, S; Tsiligianni, I; Valiulis, A; Valovirta, E; Ventura, MT; Walker, S; Williams, S; Yorgancioglu, A; Agache, I; Akdis, CA; Almeida, R; Ansotegui, IJ; Annesi-Maesano, I; Arnavielhe, S; Basagaña, X; Bateman, ED; Bédard, A; Bedolla-Barajas, M; Becker, S; Bennoor, KS; Benveniste, S; Bergmann, KC; Bewick, M; Bialek, S; Billo, NE; Bindslev-Jensen, C; Bjermer, L; Blain, H; Bonini, M; Bonniaud, P; Bosse, I; Bouchard, J; Boulet, LP; Bourret, R; Boussery, K; Braido, F; Briedis, V; Briggs, A; Brightling, CE; Brozek, J; Brusselle, G; Brussino, L; Buhl, R; Buonaiuto, R; Calderon, MA; Camargos, P; Camuzat, T; Caraballo, L; Carriazo, AM; Carr, W; Cartier, C; Casale, T; Cecchi, L; Sarabia, ACM; Chavannes, NH; Chkhartishvili, E; Chu, DRK; Cingi, C; de Sousa, JC; Costa, DJ; Courbis, AL; Custovic, A; Cvetkosvki, B; D'Amato, G; da Silva, J; Dantas, C; Dokic, D; Dauvilliers, Y; De Feo, G; De Vries, G; Devillier, P; Di Capua, S; Dray, G; Dubakiene, R; Durham, SR; Dykewicz, M; Ebisawa, M; Gaga, M; El-Gamal, Y; Heffler, E; Emuzyte, R; Farrell, J; Fauquert, JL; Fiocchi, A; Fink-Wagner, A; Fontaine, JF; Perez, JMF; Gemicioglu, B; Gamkrelidze, A; Garcia-Aymerich, J; Gevaert, P; Gomez, RM; Diaz, SG; Gotua, M; Guldemond, NA; Guzmán, MA; Hajjam, J; Villalobos, YHR; Humbert, M; Iaccarino, G; Ierodiakonou, D; Iinuma, T; Jassem, E; Joos, G; Jung, KS; Kaidashev, I; Kalayci, O; Kardas, P; Keil, T; Khaitov, M; Khaltaev, N; Kleine-Tebbe, J; Kouznetsov, R; Kowalski, ML; Kritikos, V; Kull, I; La Grutta, S; Leonardini, L; Ljungberg, H; Lieberman, P; Lipworth, B; Carlsen, KLC; Lopes-Pereira, C; Loureiro, CC; Louis, R; Mair, A; Mahboub, B; Makris, M; Malva, J; Manning, P; Marshall, GD; Masjedi, MR; Maspero, JF; Carreiro-Martins, P; Makela, M; Mathieu-Dupas, E; Maurer, M; Keenoy, ED; Melo-Gomes, E; Meltzer, EO; Menditto, E; Mercier, J; Micheli, Y; Miculinic, N; Mihaltan, F; Milenkovic, B; Mitsias, DI; Moda, G; Mogica-Martinez, MD; Mohammad, Y; Montefort, S; Monti, R; Morais-Almeida, M; Mösges, R; Münter, L; Muraro, A; Murray, R; Naclerio, R; Napoli, L; Namazova-Baranova, L; Neffen, H; Nekam, K; Neou, A; Nordlund, B; Novellino, E; Nyembue, D; O'Hehir, R; Ohta, K; Okubo, K; Onorato, GL; Orlando, V; Ouedraogo, S; Palamarchuk, J; Pali-Schöll, I; Panzner, P; Park, HS; Passalacqua, G; Pépin, JL; Paulino, E; Pawankar, R; Phillips, J; Picard, R; Pinnock, H; Plavec, D; Popov, TA; Portejoie, F; Price, D; Prokopakis, EP; Psarros, F; Pugin, B; Puggioni, F; Quinones-Delgado, P; Raciborski, F; Rajabian-Söderlund, R; Regateiro, FS; Reitsma, S; Rivero-Yeverino, D; Roberts, G; Roche, N; Rodriguez-Zagal, E; Rolland, C; Roller-Wirnsberger, RE; Rosario, N; Romano, A; Rottem, M; Ryan, D; Salimäki, J; Sanchez-Borges, MM; Sastre, J; Scadding, GK; Scheire, S; Schmid-Grendelmeier, P; Schünemann, HJ; Serpa, FS; Shamji, M; Sisul, JC; Sofiev, M; Solé, D; Somekh, D; Sooronbaev, T; Sova, M; Spertini, F; Spranger, O; Stellato, C; Stelmach, R; Thibaudon, M; To, T; Toumi, M; Usmani, O; Valero, AA; Valenta, R; Valentin-Rostan, M; Pereira, MU; van der Kleij, R; Van Eerd, M; Vandenplas, O; Vasankari, T; Carneiro, AV; Vezzani, G; Viart, F; Viegi, G; Wallace, D; Wagenmann, M; Wang, DY; Waserman, S; Wickman, M; Williams, DM; Wong, G; Wroczynski, P; Yiallouros, PK; Yusuf, OM; Zar, HJ; Zeng, SE; Zernotti, ME; Zhang, L; Shan Zhong, N; Zidarn, M
    Digital anamorphosis is used to define a distorted image of health and care that may be viewed correctly using digital tools and strategies. MASK digital anamorphosis represents the process used by MASK to develop the digital transformation of health and care in rhinitis. It strengthens the ARIA change management strategy in the prevention and management of airway disease. The MASK strategy is based on validated digital tools. Using the MASK digital tool and the CARAT online enhanced clinical framework, solutions for practical steps of digital enhancement of care are proposed.
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    UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan
    (WILEY) Bousquet, J; Samolinski, B; Kaidashev, I; Maurer, M; Roche, N; Sousa-Pinto, B; Kurchenko, A; Stepanenko, R; Tsaryk, V; Klimek, L; Ventura, MT; Bedbrook, A; Czarlewski, W; Lysanets, Y; Kupczyk, M; Skolimowski, L; Kulus, M; Del Giacco, S; Ollert, M; Garcia-Aymerich, J; Cordeiro, CR; Yorgancioglu, A; Schlapbach, C; Amaral, R; Bonaglia, C; Bossé, I; Buquicchio, R; Christou, D; Fedoruk, G; Fontanesi, P; Gemicioglu, B; Giuliano, AFM; Lepore, P; Nakonechna, A; Neisinger, S; Pereira, AM; Ramanauskaite, A; Raciborski, F; Sitkauskiene, B; Sokhatska, O; Stepanenko, V; Stevanovic, K; Syzon, O; Kvedariene, V; de Vries, G; van Eerd, M; Valiulis, A; Fonseca, JA; Anto, JM; Haahtela, T; Schünemann, H; Zuberbier, T
    Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK air (R) (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE (R) (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID- developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)- is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.