Cross-sectional study: Long term follow-up care for pediatric cancer survivors in a developing country, turkey: Current status, challenges, and future perspectives

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dc.contributor.authorİncesoy Özdemir S.
dc.contributor.authorTaçyildiz N.
dc.contributor.authorVaran A.
dc.contributor.authorKebudi R.
dc.contributor.authorZülfikar B.
dc.contributor.authorCelkan T.
dc.contributor.authorŞahin G.
dc.contributor.authorÇorapçioğlu F.
dc.contributor.authorKeskin Yildirim Z.
dc.contributor.authorPinarli F.G.
dc.contributor.authorOlgun N.
dc.contributor.authorSari N.
dc.contributor.authorDağdemir A.
dc.contributor.authorÖzyörük D.
dc.contributor.authorEren T.
dc.contributor.authorÇakir F.B.
dc.contributor.authorAdakli Aksoy B.
dc.contributor.authorBozkurt C.
dc.contributor.authorGüler E.
dc.contributor.authorÖzgüven A.A.
dc.contributor.authorErbey F.
dc.contributor.authorBerber M.
dc.contributor.authorDinçaslan H.
dc.contributor.authorÜnal E.
dc.contributor.authorKantar M.
dc.date.accessioned2024-07-22T08:07:47Z
dc.date.available2024-07-22T08:07:47Z
dc.date.issued2020
dc.description.abstractAim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice. Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors. © TÜBİTAK.
dc.identifier.DOI-ID10.3906/sag-1911-193
dc.identifier.issn13000144
dc.identifier.urihttp://akademikarsiv.cbu.edu.tr:4000/handle/123456789/14081
dc.language.isoEnglish
dc.publisherTurkiye Klinikleri
dc.rightsAll Open Access; Bronze Open Access
dc.subjectAftercare
dc.subjectCancer Survivors
dc.subjectChild
dc.subjectCross-Sectional Studies
dc.subjectDeveloping Countries
dc.subjectHumans
dc.subjectPediatrics
dc.subjectSurveys and Questionnaires
dc.subjectTransition to Adult Care
dc.subjectTurkey
dc.subjectefavirenz
dc.subjectArticle
dc.subjectcancer survivor
dc.subjectcardiotoxicity
dc.subjectchild
dc.subjectchildhood cancer survivor
dc.subjectcross-sectional study
dc.subjectdeveloping country
dc.subjectfollow up
dc.subjecthealth care system
dc.subjecthuman
dc.subjectnephrotoxicity
dc.subjectquestionnaire
dc.subjectstructured questionnaire
dc.subjectverbal communication
dc.subjectaftercare
dc.subjectdeveloping country
dc.subjectpediatrics
dc.subjectprocedures
dc.subjecttransition to adult care
dc.subjectturkey (bird)
dc.titleCross-sectional study: Long term follow-up care for pediatric cancer survivors in a developing country, turkey: Current status, challenges, and future perspectives
dc.typeArticle

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