Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study

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dc.contributor.authorSchmidt S.
dc.contributor.authorPower M.
dc.contributor.authorGreen A.
dc.contributor.authorLucas-Carrasco R.
dc.contributor.authorEser E.
dc.contributor.authorDragomirecka E.
dc.contributor.authorFleck M.
dc.date.accessioned2024-07-22T08:20:51Z
dc.date.available2024-07-22T08:20:51Z
dc.date.issued2010
dc.description.abstractThe aim of this study was to analyze the agreement between self and proxy reports of quality of life (QoL) in people with intellectual disabilities and to examine the factors which contribute to these differences. The study was conducted across six international centres in a sample of 614 adults with intellectual disabilities as well as two different samples of proxies (N=874) including both professional carers and relatives. QoL was assessed with the disability version of the WHOQOL-BREF.In both proxy samples results show a significant moderate association between the persons' QoL-assessment and the assessment of their proxies in all of the five QoL domains. There were significant mean differences in most items which varied in their direction. In general, people with disabilities rated their QoL higher than their proxies except for two items from the physical domain. The factors which most significantly contributed to these differences were proxy knowledge of the person as well as the WHODAS-disability score. Cross-cultural differences in the magnitude of concordance were observed.As a conclusion, the study shows a good agreement between the person-proxy QoL-assessments, and that the factors associated with disagreement are limited in this study. Future studies should elaborate the stability of concordance over time. © 2010 Elsevier Ltd.
dc.identifier.DOI-ID10.1016/j.ridd.2010.04.013
dc.identifier.issn08914222
dc.identifier.urihttp://akademikarsiv.cbu.edu.tr:4000/handle/123456789/18357
dc.language.isoEnglish
dc.subjectActivities of Daily Living
dc.subjectAdolescent
dc.subjectAdult
dc.subjectAged
dc.subjectAged, 80 and over
dc.subjectCaregivers
dc.subjectCross-Cultural Comparison
dc.subjectDisability Evaluation
dc.subjectEurope
dc.subjectFemale
dc.subjectHealth Surveys
dc.subjectHumans
dc.subjectMale
dc.subjectMental Retardation
dc.subjectMiddle Aged
dc.subjectPersonality Assessment
dc.subjectPsychometrics
dc.subjectQuality of Life
dc.subjectRehabilitation, Vocational
dc.subjectReproducibility of Results
dc.subjectSelf Disclosure
dc.subjectSocial Environment
dc.subjectYoung Adult
dc.subjectadult
dc.subjectaged
dc.subjectarticle
dc.subjectcaregiver
dc.subjectcomparative study
dc.subjectcontrolled study
dc.subjectcorrelation analysis
dc.subjectcultural anthropology
dc.subjectfemale
dc.subjecthuman
dc.subjectintellectual impairment
dc.subjectmajor clinical study
dc.subjectmale
dc.subjectphysical disability
dc.subjectpsychologic assessment
dc.subjectquality of life
dc.subjectrating scale
dc.subjectrelative
dc.subjectscoring system
dc.subjectself concept
dc.subjectadolescent
dc.subjectclassification
dc.subjectclinical trial
dc.subjectcultural factor
dc.subjectdaily life activity
dc.subjectdisability
dc.subjectEurope
dc.subjecthealth survey
dc.subjectIntellectual Disability
dc.subjectmiddle aged
dc.subjectmulticenter study
dc.subjectpersonality assessment
dc.subjectpsychology
dc.subjectpsychometry
dc.subjectquality of life
dc.subjectreproducibility
dc.subjectself disclosure
dc.subjectsocial environment
dc.subjectstatistics and numerical data
dc.subjectvery elderly
dc.subjectvocational rehabilitation
dc.subjectyoung adult
dc.titleSelf and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study
dc.typeArticle

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