Internalized Stigma in Hidradenitis Suppurativa: A Multicenter Cross-Sectional Study

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dc.contributor.authorBilgic A.
dc.contributor.authorFettahlloglu Karaman B.
dc.contributor.authorDemirseren D.D.
dc.contributor.authorClnar L.
dc.contributor.authorKacar N.
dc.contributor.authorTürel Ermertcan A.
dc.contributor.authorBulbul Baskan E.
dc.contributor.authorGüven M.
dc.contributor.authorYazici S.
dc.contributor.authorÖzkök Akbulut T.
dc.contributor.authorUcmak D.
dc.contributor.authorAtaseven A.
dc.contributor.authorTemiz S.A.
dc.contributor.authorEngin B.
dc.contributor.authorŞikar Aktürk A.
dc.contributor.authorSarlcaoǧlu H.
dc.contributor.authorGüler Özden M.
dc.contributor.authorÖzdemir H.
dc.contributor.authorMammadli K.
dc.contributor.authorDurmaz K.
dc.contributor.authorGülbaşaran F.
dc.contributor.authorKlllnc F.
dc.contributor.authorKaya Özden H.
dc.contributor.authorGönülal M.
dc.contributor.authorDidar Balcl D.
dc.contributor.authorÇevirgen Cemil B.
dc.contributor.authorSarlkaya Solak S.
dc.contributor.authorBaykal Selçuk L.
dc.contributor.authorÖzaydln Yavuz G.
dc.contributor.authorYavuz Ä.H.
dc.contributor.authorDönmez L.
dc.contributor.authorAlpsoy E.
dc.date.accessioned2025-04-10T11:03:28Z
dc.date.available2025-04-10T11:03:28Z
dc.date.issued2023
dc.description.abstractBackground: Hidradenitis suppurativa (HS) causes significant physical, social, and psychological burdens. Internalized stigma, acceptance of negative attitudes and stereotypes of society regarding a person's illness, has not been studied previously in HS. Objectives: The objective of this study was to investigate the internalized stigma state of HS patients and identify the factors affecting it. Methods: This multicenter, prospective, cross-sectional study included 731 patients. Internalized Stigma Scale (ISS), Hurley staging, Physician Global Assessment, Dermatology Life Quality Index (DLQI), Skindex-16, Beck Depression Inventory-II (BDI-II), and Visual Analog Scale (VAS)-pain score were used in the study. Results: The mean ISS value (57.50 ± 16.90) was comparable to the mean ISS values of studies in visible dermatological and various psychiatric diseases. A significant correlation was found between the mean values of ISS and all disease activity scores, quality of life measures, BDI-II, and VAS-pain scores. Obesity, family history, low education and income level, vulva/scrotum involvement and being actively treated are significant and independent predictive factors for high internalized stigma in multivariate analysis. Conclusions: HS patients internalize society's negative judgements, which may create a profound negative effect on access to health care. Therefore, in addition to suppressing disease activity, addressing internalized stigma is fundamental for improving health care quality. © 2023 S. Karger AG. All rights reserved.
dc.identifier.DOI-ID10.1159/000529194
dc.identifier.urihttp://hdl.handle.net/20.500.14701/44747
dc.publisherS. Karger AG
dc.titleInternalized Stigma in Hidradenitis Suppurativa: A Multicenter Cross-Sectional Study
dc.typeArticle

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