Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

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dc.contributor.authorSonay İNCESOY ÖZDEMİR
dc.contributor.authorNurdan TAÇYILDIZ
dc.contributor.authorAli VARAN
dc.contributor.authorRejin KEBUDİ
dc.contributor.authorBülent ZÜLFİKAR
dc.contributor.authorTiraje CELKAN
dc.contributor.authorGürses ŞAHİN
dc.contributor.authorFunda ÇORAPÇIOĞLU
dc.contributor.authorZuhal KESKİN YILDIRIM
dc.contributor.authorFaruk Güçlü PINARLI
dc.contributor.authorNur OLGUN
dc.contributor.authorNeriman SARI
dc.contributor.authorAyhan DAĞDEMİR
dc.contributor.authorDerya ÖZYÖRÜK
dc.contributor.authorTuba EREN
dc.contributor.authorFatma Betül ÇAKIR
dc.contributor.authorBaşak AKSOY
dc.contributor.authorCeyhun BOZKURT
dc.contributor.authorElif GÜLER
dc.contributor.authorAli Aykan ÖZGÜVEN
dc.contributor.authorFatih ERBEY
dc.contributor.authorMelda BERBER
dc.contributor.authorHandan DİNÇASLAN
dc.contributor.authorEmel ÜNAL
dc.contributor.authorMehmet KANTAR
dc.date.accessioned2024-07-24T09:11:52Z
dc.date.available2024-07-24T09:11:52Z
dc.date.issued2020
dc.description.abstractAim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice. Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.
dc.identifier.DOI-ID10.3906/sag-1911-193
dc.identifier.issn1300-0144
dc.identifier.urihttp://akademikarsiv.cbu.edu.tr:4000/handle/123456789/24027
dc.language.isoeng
dc.titleCross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives
dc.typeAraştırma Makalesi

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